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Recommended Reading and Reference List

		Abramsky, L. & Chapple, J. (2004). Prenatal Diagnosis: The Human Side, Chapman & Hall: London. Prenatal Diagnosis: The Human Side
		Anionwu, E. (1993). Sickle cell & thalassemia: Community experiences & official response. Ahmad WIU Race & Health in Contemporary Britain. Milton Keynes: Open University Press. Race and Health in Contemporary Britain
		Berry, D. (2004). Risk, Communication and Health Psychology. Open University Press. Risk Communication and Health Psychology
		Clarke, A. (Ed) (1994). Genetic Counselling Practice & Principles. Routledge: London. Genetic Counselling Practice and Principles
		Green, J.M., Statham, H. & Snowden, C. (1992). Screening for fetal abnormality: Attitudes & experiences. In: T. Chard & M.P.M. Richards (Eds.) Obstetrics in the 1990s: Current Controversies, London: Mac Keith Press, 65-89. Obstetrics in the 1990s: Current Controversies
		Gregg R (1995). Pregnancy in a High-Tech Age: Paradoxes of Choice. New York: New York Press. Pregnancy in a High-Tech Age: Paradoxes of Choice
		Hall, R.D. (2004). The parents’ reactions to termination of pregnancy for fetal abnormality: From a father’s point of view. In: L. Abramsky & J. Chapple (Eds.) Prenatal Diagnosis: The Human Side, London: Chapman & Hall, 173-180. Prenatal Diagnosis: The Human Side
		Kaplan, D. (1994). Prenatal Screening & Diagnosis: The Impact on Persons with Disabilities. K.H. Rothenberg & E.J. Thomson(Eds.) Women & Prenatal Testing: Facing the Challenges of Genetic Technology. Columbus: Ohio State University Press. Women & Prenatal Testing: Facing the Challenges of Genetic Technology
		Kitcher, P. (1997). The Lives to Come: The Genetic Revolution and Human Possibilities. Penguin Press. The Lives to Come: The Genetic Revolution...
		Morris, J. (1993). Pride against Prejudice: Transforming attitudes to Disability. London: The Women’s Press. Pride against Prejudice: Transforming attitudes to Disability
		Moulder, C. (1998). Understanding Pregnancy Loss: Perspectives & Issues in Care. MacMillan Press. Understanding Pregnancy Loss: Perspectives & Issues in Care
		RCOG (1996). Report of the RCOG on termination of pregnancy for fetal abnormality in England, Wales & Scotland. London: RCOG. Termination of pregnancy for fetal abnormality in England, Wales & Scotland
		RCOG (1993). Report of the RCOG working party on biochemical markers & the detection of Down’s syndrome. London: RCOG. Biochemical markers & the detection of Down’s syndrome...
		RCOG (1997). Report of the RCOG working party on ultrasound screening for fetal abnormalities. London: RCOG. Ultrasound screening for fetal abnormalities...
		RCOG & RCPCH (1997). Fetal abnormalities: Guidelines for screening, diagnosis & management.London: RCOG & RCPCH.
		RCP (1989). Prenatal diagnosis & screening: Community and Service Implications. London: RCP. Prenatal diagnosis & screening: Community and Service Implications
		Rothenberg, K.H. & Thomson, E.J. (1994). Women & Prenatal Testing: Facing the Challenges of Genetic Technology. Columbus: Ohio University Press. Women & Prenatal Testing: Facing the Challenges of Genetic Technology
		Rothman, B.K. (1994). The Tentative Pregnancy: Amniocentesis and the Sexual Politics of Motherhood. London: Pandora. The Tentative Pregnancy: Amniocentesis and the Sexual Politics of Motherhood
		Statham, H. (1992). Professional understanding & parents’ experience of termination. In D.J. Brock, C.H. Rodeck & M.A.Ferguson-Smith (Eds.) Prenatal Screening & Diagnosis. London: Churchill Livingstone, 697-702. Prenatal Screening & Diagnosis
		Statham, H. (2004). The parents’ reactions to termination of pregnancy for fetal abnormality: From a mother’s point of view. In L. Abramsky & J. Chapple (Eds.) Prenatal Diagnosis: The Human Side. London: Chapman & Hall, 157-172. Prenatal Diagnosis: The Human Side
		Statham, H., Solomou, W., Green, J. (2001). When a Baby Has an Abnormality: A Study of Parents' Experiences. Univ.Camb.,Centre for Family Research When a Baby Has an Abnormality: A Study of Parents' Experiences
		Turner, L. (2004). Problems surrounding late prenatal diagnosis. In L. Abramsky & J. Chapple (Eds.) Prenatal Diagnosis: The Human Side. London: Chapman & Hall. Prenatal Diagnosis: The Human Side
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Articles and Papers (in journals)

Abramsky, L., Hall, S. Levitan, J. & Marteau, T.M. (2001). What parents are told after prenatal diagnosis of a sex chromosome abnormality: Interview & questionnaire study. British Medical Journal, 322, 463-466.

Bennett, P. (1993). Ethics & late termination of pregnancy. Lancet, 342, 929.

Black, R.B. (1989). A one & six month follow-up of prenatal diagnosis patients who lost pregnancies. Prenatal Diagnosis, 9, 795-804.

Bryant, L. Green, J. & Hewison, J. (2001). Prenatal screening for Down’s syndromes: Some implications of a ‘screening for all’ policy. Public Health, in press.

Chervenak, F.A., McCullough, L.B. & Cambell, S. (1999). Third trimester abortion: Is compassion enough? British Journal of Obstetrics & Gynaecology, 106, 293-296.

Chitty L.S. (1995). Ultrasound Screening for Fetal Abnormalities. Prenatal Diagnosis, 15, 1241-1257.

Chitty L.S., Barnes, C.A. & Berry, C. (1996). Continuing with pregnancy after a diagnosis of a lethal abnormality: Experience of five couples & recommendations for management. British Medical Journal, 313, 478-480.

Dommergues M, Benachi, A. et al. (1999). The reasons for termination of pregnancy in the third trimester. British Journal of Obstetrics & Gynaecology, 106, 297-303.

Downe, S. (1995). Screening for genetic abnormalities: Risks & benefits. British Journal of Midwifery, 2, 406-407.

Finnemore, P. (2000). Future imperfect: Coping and communication in continuing pregnancy after diagnosis of fetal abnormality. Middlesex University.

Green, J.M. & Statham, H. (1993). Testing for fetal abnormality in routine antenatal care. Midwifery, 9, 124-135.

Green, J.M. (1993). Ethics & late termination of pregnancy. Lancet, 342, 1179.

Green, J.M.(1995). Obstetricians’ views on prenatal diagnosis & termination of pregnancy 1980 compared with 1993. British Journal of Obstetrics & Gynaecology,102, 228-232.

Green, J.M. (1994). Serum screening for Down’s syndrome: experiences of obstetricians in England & Wales. British Medical Journal, 39, 769-772.

Green, J.M. (1990). Calming or Harming? A critical review of psychological effects of fetal diagnosis on pregnant women. Galton Institute Occasional Papers 2nd Series, No 2.

Hall, S., Bobrow, M. & Marteau, T.M. (2000). Psychological consequences for parents of false negative results on prenatal screening for Down’s syndrome: Retrospective interview study. BMJ, 320, 407-412.

Harris, J. (1999). Precious fertility and third-trimester tests. Prenatal Diagnosis, 19, 753-754.

Hunfeld, J. (1995). The grief of late pregnancy loss: A 4 year follow up. PhD Thesis: Erasmus University Rotterdam.

Iles, S. (1989). The loss of early pregnancy. Bailliere’s Clinical Obstetrics & Gynaecology, 3(4), 769-790.

Iles, S. & Gath, D. (1993). Psychiatric outcome of termination of pregnancy for fetal abnormality. Psychological Medicine, 23, 407-413.

Julian-Reynier, C., Aurran, Y., Dumaret, A., et al. (1995). Attitudes towards Down’s syndrome: Follow up of a cohort of 280 cases. Journal of Medical Genetics, 32, 597-599.

Khalid, L., Price, S.M. & Barrow, M. (1994). The attitude of midwives to maternal serum screening for Down’s syndrome. Public Health, 108, 131-136.

Lilford, R.J. & Thornton, J. (1993). Ethics & late termination of pregnancy. Lancet, 342, 499.

Lilford, R.J., Stratton, P. & Godsil, S. & Prasad, A. (1994). A randomised trial of routine versus selective counselling in perinatal bereavement from congenital disease. British Journal of Obstetrics & Gynaecology, 101, 291-296.

Mansfield, C., Hopfer, S. & Marteau, T.M. (1999). Termination rates after prenatal diagnosis of Down’s syndrome, spina bifida, anencephaly and Turner and Klinefelter syndromes: A systematic literature review. Prenatal Diagnosis, 19, 808-812.

Marteau, T.M., Mansfield, C.D. (1998). The psychological impact of prenatal diagnosis and subsequent decisions. In O’Brien PMS (Ed.) Yearbook of Obstetrics and Gynaecology. London: RCOG.

Marteau, T.M., Slack, J. Kiddj, & Shaw, R.W. (1992). Presenting a routine screening test in antenatal care: Practice Observed. Public Health, 106(2), 131-141.

Nicolaides, K., Brizot, M.L. & Sniders, R.J.(1994). Fetal nuchal translucency: Ultrasound screening for fetal trisomy in the first trimester of pregnancy. British Journal of Obstetrics & Gynaecology, 5(1), 15-19.

Pandya, P.P., Kondylios, A., Hilbert, L., et al. (1995). Chromosomal defects and outcomes in 1015 fetuses with increased nuchal translucency. Ultrasound in Obstetrics & Gynaecology, 5(1), 15-19.

Robson, F.M. & Kerzin-Storrar, L. (2000). Experience of the male partners of women undergoing termination of pregnancy for medical reasons. Abstract. Paper given at the 7^th European Meeting on Psychosocial Aspects of Genetics, Manchester, September 20-23^rd. Journal of Medical Genetics, 37(Suppl No.11), SP42.

Rona, R.J., Smeeton, N.C., Beech, R., et al. (1998). Anxiety and depression in mothers related to severe malformation of the heart of the child and fetus. Acta Paediatr, 87, 201-205.

Salvesen, K.A., Oyen, L., Schmidt, N., et al. (1997). Comparison of long-term psychological responses of women after pregnancy termination due to fetal anomalies and after perinatal loss. Ultrasound Obstet Gynecol, 9, 80-85.

Sandelowski, M. & Jones, L.C. (1996). Couples’ evaluations of foreknowledge of fetal impairment. Clinical Nursing Research, 1-5.

Shakespeare, T. (1998). Choices and rights: Eugenics, genetics and disability equality. Disability & Society, 13(5), 665-681.

Smith, D.K., Shaw, R.W. & Marteau, T. M. (1994). Informed consent to undergo serum screening for Down’s syndrome: The gap between policy & practice. British Medical Journal, 309-776.

Smith, D.K. & Marteau, T.M. (1995). Detecting fetal abnormality: Serum screening & fetal abnormality scans. British Journal of Midwifery, 3, 133-136.

Spencer, K., Spencer, C.E., Power M., et al. (2000). One stop clinic for assessment of risk for fetal anomalies: A report of the first year of prospective screening for chromosomal anomalies in the first trimester. British Journal of Obstetrics & Gynaecology, 107(10), 1271-1275.

Statham, H. & Green, J.M. (1995). Serum screening for Down’s syndrome: Some women’s experiences. BMJ, 307, 476-478.

Statham, H., Solomou, W. & Chitty, L. (2000). Prenatal diagnosis of fetal abnormality: Psychological effects on women in low-risk pregnancies. Bailliere’s Clinical Obstetrics & Gynaecology, 14(4), 731-747.

Suslak, L. Scherer, A. & Rodriques, G. (1995). A support group for couples who have terminated a pregnancy after prenatal diagnosis: Recurrent themes & observations. Journal of Genetic Counselling 1995, 4, 169-178.

Wald, N. et al. (1997). Antenatal screening for Down’s syndrome. Journal of Medical Screening, 4, 181-246.

White-van Mourik, M.C.A. et al. (1990). Patient care before & after termination of pregnancy for neural tube defects. Prenatal Diagnosis, 10, 497-505.

White-van Mourik, M.C.A., Connor, J.M. & Ferguson-Smith, M.A. (1992). The psychosocial sequelae of a second-trimester termination for fetal abnormality. Prenatal Diagnosis, 12, 189-204.

Willis, L. (2000). Continuing with pregnancy following the diagnosis of abnormality: Women’s attitudes and experiences. University of Manchester.

Zeanah, C.H., Dailey, J.V., Rosenblatt, M.J. & Saller, D.N.J. (1993). Do women grieve after terminating pregnancies because of fetal anomalies? A controlled investigation. Obstet Gynecol, 82(2), 270-275.

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